Mission Statement

The title of this blog is called the ride because of the daunting emotional roller coaster this condition causes.This is a blog as well as an informational page on sacroiliac joint dysfunction (SIJD).While going through this my self I realized there wasn’t a lot of information on this. I noticed that good information wasn’t easy to find. With the help of others and endless hours of searching as well as doctor visits I was able to figure some things out. I am not an expert just someone who has had to spend many hours researching and coping on a daily basis with this condition. I am not Pro-surgery unless necessary, I am for feeling better. I am sharing my experience, the experience of others (including non surgery go-er’s) and treatment options that you can bring to your doctor . I am not a doctor and I am not claiming to be one, just a patient who is wanting to share knowledge. Only you and your doctor can decide what is best for your care. 

Please keep in mind that this site is being created at the moment so parts of it are still being worked on however some things are fully operational, I ask for your patience and understanding as its being updated, as I am preparing for my surgery.

Whats NEW- *************** I have added been on hiatus so mostly just check out my blog section where I update how I am doing 

My Goals

To give information, or provide outlets for information on subject matter SIJD

To offer Support, or places where patients can talk to friends, or get help with finances relating to treatment


THIS IS AN ONGOING SITE NEW INFO IS CONTINUALLY BEING ADDED 

27 thoughts on “Mission Statement”

  1. Robert Hughes says:
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    I look forward to reading your experiences. I’m hoping this is a short blog because you find help and relief.

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  2. Kim says:
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    Reading your blog has made me feel not so alone. Last week I had RFN to the si joint. still in pain, Inot knowing what the future holds and feeling alone.kim

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  3. Roxy says:
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    Thank you for starting this blog. I have had SI joint instability over 5 years and have eliminated all functional things from my life. I am seeking a cure.

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  4. Lauren says:
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    Thank you for reaching out to me. I am going to post an update to my story section .. and also id like to post more stories .. if you would like to share id be more than willing to add it to my site.

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  5. April says:
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    Hello there,

    I just came across your blog after being diagnosed with SIJD myself. I’ve been in constant pain for more than three years and just recently had the SI joint injection (anesthetic only) which gave me complete relief for 8 hours.

    I’m so sorry that you have had to go through so much pain and suffering. I hope that you’re doing better. Can’t wait to read your Part 3.

    I would love to read more peoples stories. Especially people around my age. I’m 46 and feel like this should be my prime. I sooooo just want to be pain free.

    Again, hope you’re doing well.

    Take care,
    April

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  7. Sophie Luciano says:
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    What was your surgery recovery like? I have been in pain for ten years but am having some trouble convincing my parents that it is time to get fused. I will need their help recovering seeing as I’m 20 years old and still live at home.

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    • Lauren says:
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      Honestly it was hell its still hell. I am 27 and 2 years post op my life is not what I expected. have you done physical therapy tried prolo or Radio frequency ablation ? Surgery should always be a final option … its not like getting a acl replaced or even a disc replaced in your spine its awful… and it dosn’t heal like people think and not nearly as quick. I need to update how I am so people really know ….

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  8. Sharon says:
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    I had SI Joint Fusion. I have screws and a metal plate in my spine. I am looking for information as to how long does it take to recover from surgery? I am 11 weeks out from surgery and I am sore and stiff legged. I can’t sit long or stand long. How long it takes to be able to do return to the routine in life I was used too? Thanks for any information.

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    • Lauren says:
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      Hi Sharon it depends on how bad you were prior to surgery and the type of operation you had and age. For instance my sijd was caused by a trauma I was in horrible shape. 6 months for most people is pretty average before you notice some good healing, however I am two years out post second surgery and I am worse and have more layers of problems. I’m 28 and now have arthritis in my facet joints. I obviously did not have that before my injury or surgeries. Have you started physical therapy yet ?

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  9. Caroline says:
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    Hi Lauren, your blog is the first piece of writing out here in cyberspace that actually made me realise I am truly not alone with SIJD. I am going on 26 and live in Perth, Western Australia. I have suffered this wretched condition on my left SIJ for 10 years and live on painkillers, physiotherapy and have had 3 cortisone injections in the past 4 years. It wasn’t caused by an injury, rather my SIJD is from scoliosis (curvature of the lower spine) apparently. It is aggravated when I sit, walk or do too much physical activity i.e. shopping, lifting etc. I lived in Israel last year and was so grateful when I found a manipulative physiotherapist who could help snap my SIJ back into place when it popped (moved) just like my physio does at home. I am home now and done living in pain and am seriously looking into every type of therapy out here in Australia because SIJ fusion is not done Down Under. Would you recommend I investigate surgery overseas? Thanks for your time! Caroline 🙂

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    • Lauren says:
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      There is actually a great Physio in Australia im friends with him on facebook, he has a blog on WordPress I can get you his information today. Also if your looking to go in for further evaluation in the USA I highly recommend dr David Polly at the university of Minnesota in Minneapolis. He is or has been the number one orthopedic surgeon. Also he has an amazing understanding of this condition had I seen him first instead of the Simms and Weiss group in Georgia had I done that instead I wouldn’t be in so much pain and my surgeries would have been done correctly.

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      • Caroline Frank says:

        Hi Nancy, yes – my Paracetamol tablets and Diclofenac tablets kept me sane. Since I wrote here in 2015 I discovered Pilates and it has changed my life dramatically in a positive way. In two years of one-on-one weekly Pilates sessions, I have weaned off my pain killers and seldom have SIJ pain. I do get the occasional flare up from sitting for too long as a high school English teacher whose life is consumed my marking essays. When I do I pop a Paracetamol and it works for me. Thanks to regular exercise my condition is finally under control. I am so much happier than I have ever been and know what flares up my SIJ issue and how best to deal when pain strikes. What is your main issue Nancy?

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  10. Caroline says:
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    Thanks so much for your prompt reply. I cannot imagine the pain you are in so I truly appreciate your help Lauren. Wishing you a better 2015 than your previous years! I look forward to hearing from you mate. Cheers!

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  11. Tessa says:
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    Hi, I am 18 months in with various therapies under my belt (radio frequency, prolotherapy x 2 etc). Mine started with coccyx pain and has spread to SI, sciatic nerve and piriformus pain. I was hoping I would be coming to the end of it all soon as I seem to have lost the old me in the whole process. However, many of you have been going through all this pain for far longer.. 😦
    Does anyone recommend a specialist in the UK, South east ideally?
    Thanks

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  12. Jenny says:
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    Hi Lauren,
    Thanks you for writing this blog. It is great to see people talking about the complexity of SIJ dysfunction. I hope your circumstances have improved lately. I have issue with my left SIJ. My doctor’s think the ligaments were damaged during hip surgery around 2 years ago. It has been such a roller coaster ride. Looking back now I think I definitely went through a stage of depression. Every time I tried to take back control of my life the pain would eventually knock me down. I am not pain free but I can honestly say I am doing much better now. My outlook on life is so different. I am working with a psychologist that specializing in chronic pain. Of all the medical professionals I have been to for this problem she has been the most helpful by far. I am finally learning to accept that I have pain and I do my best not to worry about it.. The idea is say something like “this is my life, this is what I’m going to do, pain if you are going to stick around you will have to come along for the ride”. I have also stared some basic meditation. It is amazing.. for me it stops the pain from getting to the next level and helps me relax and get to sleep. I hope my experience is of help to someone.
    Remember it is your life to enjoy.

    Wishing everyone lots of love and happiness. Jenny

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